BetaThis is a new independent transparency project, not an official government website. The data is sourced from public registers and may contain errors, so always verify against the official source. If you find a problem, please report it here.

Loading charity profile…

SaveCharity Commission

RemovedOther802727Registered 17 Jan 1990

Marfan Association UK

Disability · Formerly Marfan Association

Track this charity

Get an email when this charity files new accounts or wins a government contract.

Latest income: £13K
Latest spend: £7K
Trustees: 0; 0 chairs
Financial years: 5

About

We continue our vital roles offering support to patients with Marfan Syndrome, their family members and their individual medical specialists holding meetings updating them on the current situation. We sponsor and undertake research projects, providing updated text, speaking at medical seminars, creating life-saving awareness and assisting early diagnosis and good individual medical care plans.

What it doesDisabilityEducation/trainingGeneral charitable purposes+1 more

Who it helpsChildren/young peopleElderly/old peopleOther charities or voluntary bodies+2 more

How it worksActs as an umbrella or resource bodyProvides advocacy/advice/informationProvides services+1 more

Charity details

Registered name: MARFAN ASSOCIATION UK
Registered: 17 January 1990
Removed: 24 April 2020
Reporting status: Removed
Latest accounts: 1 February 2019 – 31 January 2020
Address: -
Gift Aid: Yes
Holds land: No
Classifications: Acts as an umbrella or resource body, Provides advocacy/advice/information, Provides services, Sponsors or undertakes research, Disability, Education/training, General charitable purposes, The advancement of health or saving of lives, Children/young people, Elderly/old people, Other charities or voluntary bodies, People with disabilities, The general public/mankind