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SaveCharity Commission

RegisteredCIO1182873Registered 9 Apr 2019

International Prader-Willi Syndrome Organisation

Disability · Cambridge

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Latest income: £245K
Latest spend: £217K
Trustees: 12
Financial years: 5

About

IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.

What it doesDisabilityThe advancement of health or saving of lives

Who it helpsOther defined groups

How it worksActs as an umbrella or resource bodyMakes grants to individualsMakes grants to organisations+2 more

Charity details

Registered name: INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION
Registered: 9 April 2019
Reporting status: Submission Received
Latest accounts: 1 January 2024 – 31 December 2024
Address: IPWSO, Salisbury House, 2-3 Salisbury Villas, CAMBRIDGE, CB1 2LA
Phone: 07511585700
Email: [email protected]
Website: https://www.ipwso.org/ ↗
Gift Aid: Yes
Holds land: No
Classifications: Acts as an umbrella or resource body, Makes grants to individuals, Makes grants to organisations, Provides advocacy/advice/information, Sponsors or undertakes research, Disability, The advancement of health or saving of lives, Other defined groups