Loading charity profile…
BETAThis is a new independent transparency project, not an official government website. The data is sourced from public registers and may contain errors, so always verify against the official source. If you find a problem, please report it here.
We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD), to spread awareness of the disease to medical establishments and raise awareness . We have established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.