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This is the same organisation registered with more than one charity regulator. Government payment and contract figures shown here are matched by this registration's name, so they may not capture spending recorded against the other registration's name — we can't attribute a given payment to one registration over the other.
PROVIDING SUPPORT AND INFORMATION FOR PATIENTS & THEIR FAMILIES WHO ARE AFFECTED BY CRANIOSYNOSTOSIS AND RARE CRANIOFACIAL CONDITIONS; RAISING AWARENESS WITH THE PUBLIC AND HEALTH PROFESSIONALS AND FACILITATING RESEARCH IN THESE CONDITIONS.