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This is the same organisation registered with more than one charity regulator. Government payment and contract figures shown here are matched by this registration's name, so they may not capture spending recorded against the other registration's name — we can't attribute a given payment to one registration over the other.
Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare